3901 W. 86th Street, Ste 380
Indianapolis, IN  46268

1531 13th Street, Ste 2210
Columbus, IN  47201

1.800.526.6618  fx 317.876.0606 
info@indianaepilepsyfoundation.org

 

Not another moment lost to seizures

Epilepsy Information

ABOUT EPILEPSY

Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain. When a person has two or more seizures, they are considered to have epilepsy. For 70 percent of people with seizures and epilepsy, the cause of their condition is unknown. A seizure occurring without a clear cause is called idiopathic.

Seizures can last a few seconds to a few minutes. They can have many symptoms, from convulsions and loss of consciousness to some that are not always recognized as seizures by the person experiencing them or by health care professionals: blank staring, lip smacking, or jerking movements of arms and legs.

One in 10 adults will have a seizure sometime during their life. One percent of the population -- more than 3 million Americans -- are treated for epilepsy, most commonly with antiseizure medications.

Danny Did Foundation focuses on
Sudden Unexplained Death in Epilepsy (SUDEP)

Founded by Chicagoans Mike and Mariann Stanton in January 2010 after the death of their 4-year–old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures with two main goals in mind: (1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures, and (2) the mainstreaming of seizure detection and prediction devices that may assist in preventing deaths caused by seizures. 

The Danny Did Foundation views these devices as complementary to medicinal, surgical and dietary measures that are used to treat seizures.  For more information about SUDEP and this organization, go to http://www.dannydid.org/ 

 

TRAVEL ASSISTANCE

If you or a family member need financial assistance with travel to your neurologist, money may be available for you through the J. Kiffin Penry Travel Assistance Fund.  Please click on the link to see the forms that you will need to print out, complete and return to EFI.  Alll money is on a reimbursable basis.

RESEARCH NEWS

As part of our mission statement, the Epilepsy Foundation of Indiana supports both local and national research efforts to control and cure epilepsy.

To see the latest information on research initiatives sponsored by the National Epilepsy Foundation, 
click here. 


OTHER HELPFUL SITES ABOUT EPILEPSY

National Epilepsy Foundation

Epilepsy Advocacy

Indiana Comprehensive Epilepsy Services Epilepsy Clinic

Indiana Public Transportation

About Special Kids

Indiana Civil Rights Commission



KNOWLEDGE IS POWER


"Knowledge is Power" - When it comes to dealing with epilepsy, that phrase has never been more true.  The more you know, the better you will be  able to manage your epilepsy, which in turn will help you in obtaining an accurate diagnosis and proper treatment of your epilepsy.

 YOU are your best advocate.  The Epilepsy Foundation is here to help you be as educated as you can be about your epilepsy.  This website has been designed to answer many of the questions you might have about epilepsy and it's related topics. If by chance you don't find an answer here, we invite you to email one of our staff members who may have what you are looking for, or can point you in the right direction. No question is silly nor foolish. You are the reason we're here, so, please ask for the info you need. 

 Remember the goal is "no seizures, no side effects" - the more you know - the closer you will be to this goal and the better you may feel.

 

Remember, If you don't find the answers to your questions on this website - you are invited to

 

ASK THE STAFF

 

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